Saturday, September 25, 2010

A Vocal Minority?

Here's another article about the  angioplasty backlash
Ahh! poor doctors. Their patients are angry and vocal about not receiving treatment.  An angry minority.

I don't think we are a minority, but yes we are angry. Angry because all those years you claim to have dedicated to finding a cure have resulted in NOTHING!!!!

Nothing except more drugs!! Youv'e never had to justify your research; wether it is leading to anything promising. You've never been scrutinized and attacked the way Dr. Zamboni has been. Never had to prove that any of the drugs you prescribe actually work.
 We, the MS community, are too quick to embrace this new therapy? Well dear doctors you were too quick to dismiss it. You blame the media for causing this controversy? Well you didn't waste any time grabbing national headlines calling CCSVI a hoax, only to back track a week later because you might be able to score some research dollars.  Ha! you tell MS patients about the dangers of angioplasty? Oh we might get a blood clot? You aren't vascular surgeons, you are nuerologists. Stick to what you know, which when it comes to MS doesn't seem to be a whole heck of a lot.

Yeah some patients are afraid to speak out because their doctors will dump them if they dare even ask about CCSVI. 

Please answer this question dear doctors and then maybe I will shut up about angioplasty Tell me  what have I got to lose having this treatment? AND then tell me what you have to offer that is better.

Tuesday, September 21, 2010

The Latest MS News

Here's an article about the rally on Parlaiment Hill yesterday  I wanted to attend this rally but  I wasn't up for a five hour drive to Ottawa.  Gee what do you know? The health minister had a previous engagement. She should be sacked for her whishy washy  bungling of this issue. 

Here's an editorial from the National Post about allowing MS patients the right to have angioplasy. What really annoys me about this editorial is even though it's calling on the governemnt to do the right thing, the writer is ignorant  of the facts. First of all, we  know that angioplasy isn't a cure for MS, secondly, this research and procedure are only controversial because the  medical community contines to make  bold claims it  doesn't work, and  thirdly why the heck should I have to pay for this procedure when we have universal healthcare, which I pay plenty for.  At least the editorial supports allowing  patients to go ahead  if they are willing to pay, which I am. I just don't want to go to a foreign country to have it done.

Consider this:  If people are allowed to pay to get boob implants and are covered to get an elastic band wrapped around their stomach to lose weight; why can't I be alowed to have a simple operation to improve my health ?  Did they have clinical trials for breast implants?  

 The MS   community is not a bunch of dim witted incompetents. We are well informed, have an excellent newtwork, and we care about each other! Stop treating us like dummies!!

Lastly I need to come up with an idea to raise money for the class action suit. It's going to be rough what with all the fake charities being uncovered lately. Anybody have ideas?

Sunday, September 19, 2010

The Season of Fairs and Festivals

You know Fall has arrived  when all the fairs and festivals come along one after another.
I'm a little late posting these photos of last weeks Locke Street Fesitval, which is right around the corner from my house.  Mr.Carrot, wants us  to plant garlic bulbs this Fall. He says 90% of garlic is now imported from China. It's an example of how we are losing control of our food supply . So go ahead and plant a garlic bulb. Mr. Carrot says even one that originated in China is OK. If you want more info checkout

Tuesday, September 14, 2010

Who's Misinformed?

Federal health minister Leona Aglukkaq,  accuses the  media of spreading misinformation on MS research funding!! Read it here

Maybe if the Federal and Provincial  governments, the MS societies, and  the healthcare community, would make up their minds,  quit back pedalling,  and being so damed wishy washy, there would be less confusion.

Don't blame the media for the mess you have created  by raising people's hopes only to have them dashed time and again.  Hmmm, I wonder if all those petitions and a possible class action suit  have you in a tizzy, so now it's time to play the blame game.

MS patients aren't going away. We've got nothing to lose and we aren't going to give up on a procedure that might buy us more time to live a decent productive life.

And I ain't spending my money  going to a foreign country for something I pay for right here in my own country. It's called universal healthcare  stupid !!! Do you even know what that means?

Sunday, September 12, 2010

AFA Web Conference September 16th

On September 16th  Angioplasty For All, will be hosting a web conference regarding preparations for litigation against the Ontario government. The litigation is necessary to  ensure that this procedure, Angioplasty, is made available to all MS sufferers, in our own country. Under the Health Act, the government and any of it's bureacracies, have no right to deny us this choice.

Join the discussion, submit a question,  donate, inform yourself, spread the word. 

Thursday, September 9, 2010

Lack of Vitamin D: The Culprit Again?

A study linking  lack of vitamin D as the cause of  schizophrenia. How many illnesses is that now?

Saturday, September 4, 2010

Petition and First Signs of Fall

 Been busy trying to get signatures on a petition that will be presented to Parliament on September 20th. See the deails here. Maybe get one going too if you live in Canada.
If it doesn't work, I'm getting a lawyer.  I don't have time to wait for a bunch of greedy opportunists messing with my life.

 The weather has really cooled down and I'm loving it! I know for most people it's disapointing for the last long weekend of summer to have  stormy weather and cool temperatures . Well, it's going to get hot again next week The Fall forecast is for above normal temperatures so I 'm going to enjoy this break from cold packs and sunscreen.

Here are a few photos showing the first signs of Fall along with an impromptu sculpture made by an unknown trail walker.  We are also promised amazing fall colours this year as the trees had plenty of sunshine and water .