tag:blogger.com,1999:blog-8754773372316501693.post1276754127970770144..comments2023-11-03T04:07:16.450-07:00Comments on Carole's MS blog: Celebrity MS : Does It Help Us ?Taxingwomanhttp://www.blogger.com/profile/05564125285937262315noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-8754773372316501693.post-41447886729977381842009-12-01T18:39:22.815-08:002009-12-01T18:39:22.815-08:00I ask myself this question often. I think if USA h...I ask myself this question often. I think if USA had a big loved star like Mylie Cyrus (I have no kids and only recently found out she was Hannah Montana LOL) or Jennifer Aniston, OPRAH, ELLEN(though they are both too old really) SOMEBODY everyone loves...or one of Bill gates or Warren Buffett's kids/grandkids---THEN, maybe. I saw that movie when it first came out and it DID disturb me. (and my loved ones) You are right though, most people do NOT KNOW MS, including in the nedical community.Diane J Standifordhttps://www.blogger.com/profile/11862850657925658079noreply@blogger.comtag:blogger.com,1999:blog-8754773372316501693.post-90339659530410385432009-11-30T05:31:44.429-08:002009-11-30T05:31:44.429-08:00Hi! Anne
Your soapbox comments are welcome and rig...Hi! Anne<br />Your soapbox comments are welcome and right on!<br /> Thank YouTaxingwomanhttps://www.blogger.com/profile/05564125285937262315noreply@blogger.comtag:blogger.com,1999:blog-8754773372316501693.post-1161689067466983362009-11-30T03:11:59.714-08:002009-11-30T03:11:59.714-08:00For years, not many people knew I had MS. When th...For years, not many people knew I had MS. When they found out (from one way or another), the negative comments were rampant -everything from "you don't look like you have MS" to "I don't believe it". <br /><br />In the last ten years, my physical appearance has changed noticably and you'd think I was on my deathbed the way some people treat me. <br /><br />When Teri Garr came out with her book about her MS, she touched on this in her book, also saying she kept her dx under wraps because she would not be able to get work in films.<br /><br />Now that she has been "out" she gets what she calls "pity work" but can't get insured on films. She she has to provide her own in order to work.<br /><br />In her case, I think writing about her MS experiences has brought alot of helpful information to light for the public to know that maybe they didn't know before and I think alot of people have learned from her book.<br /><br />In that vein, I think celebrity has its values.<br /><br />Non-celebrity folks (like you and me) can only contribute through our writings in blogs and other venues and in talking to people in an effort to enlighten them that we are not all alike, no two people with MS are alike, and some MS'er celebrity (i.e. Montel) only want to sell books to keep their income going because they can no longer be insured in entertainment world to keep working regularly.<br /><br />Those MS'er celebrity interviews (i.e. Montel, etc.) are what is hard for me to watch and disturb me greatly. You just want to shake them or yell at them that we are not all like them.<br /><br />I think what many people do forget is that not all MS is the same, no two people experience exactly the same symptoms in exactly the same way, and that not all medicines and/or treatments work for everyone.<br /><br />So when a film comes along portraying the worse of the worst in MS, we have to do damage control with family members and put out the correct information so they don't think we are gonna die in a year.<br /><br />End of soap box. Sorry about that.<br />AnneAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8754773372316501693.post-18166129377559144482009-11-29T18:20:56.724-08:002009-11-29T18:20:56.724-08:00Thanks for all your comments!
Lori just wondering...Thanks for all your comments!<br /><br />Lori just wondering where all these Canadians are that know about Ms I haven't met any. I get those faking it comments too.Taxingwomanhttps://www.blogger.com/profile/05564125285937262315noreply@blogger.comtag:blogger.com,1999:blog-8754773372316501693.post-44535197907812588102009-11-29T16:30:54.095-08:002009-11-29T16:30:54.095-08:00I think in some cases, films (if done right) can b...I think in some cases, films (if done right) can bring about mass awareness of an illness or whatever the focus may be. Then again, Hollywood likes to take things to extremes and often does more harm than good... I haven't seen the film, so I can't really say either way. <br /><br />"Films are meant to be enjoyed and not teach, unless they are documentaries?"<br /><br />I don't think that's true. Many films can teach us things, documentary or not. Sometimes you just have to go beyond the mainstream to find them.Yuki Barahttps://www.blogger.com/profile/00292951134511596880noreply@blogger.comtag:blogger.com,1999:blog-8754773372316501693.post-15532852339226412942009-11-29T11:30:56.297-08:002009-11-29T11:30:56.297-08:00I understand what you are saying! But, when you s...I understand what you are saying! But, when you see what Ali and Michael J. Fox have done for Parkinson's disease I tend to believe it all helps. I think awareness is key!!Lisahttps://www.blogger.com/profile/08369036322824896633noreply@blogger.comtag:blogger.com,1999:blog-8754773372316501693.post-32256560094743919622009-11-29T09:52:01.556-08:002009-11-29T09:52:01.556-08:00I actually met Jacqueline Du Pre she was in wheelc...I actually met Jacqueline Du Pre she was in wheelchair with black nurse. Read Peter & Wolf while Russian husband played piano [he had other family in France]suejanhttps://www.blogger.com/profile/06984149384432410541noreply@blogger.comtag:blogger.com,1999:blog-8754773372316501693.post-35471386815093367362009-11-29T08:26:26.835-08:002009-11-29T08:26:26.835-08:00Living in Canada, it is estimated that 1 in every ...Living in Canada, it is estimated that 1 in every 2 people knows someone with MS. Since my diagnosis I've heard a lot of "Oh my (insert relationship here) has/d MS."<br /><br />This has both helped and harmed me. Helped in that most people get what the basics of the condition are, but the harm has cut both ways.<br /><br />My boss at the time of my diagnosis thought that I was either drunk or faking my symptoms because her best friend has MS and she still skis and wears heels, but was surprised that I didn't have any pain.<br /><br />My grandmother knew a woman in the 1950s who was diagnosed with MS and died less than a year later. Since I live 3000 miles from her and she hasn't seen me in 3 years she thinks that I am lying to her that I'm doing well and getting back to working, etc. because Betty Brooks was so sick and died at the same point in time that I am right now.<br /><br />So I don't think that movies or Montel Williams do much harm because I don't think that many people make the connection. I still have acquaintances who think I have Muscular Dystrophy for crying out loud! I think if people want to identify me with something they saw they will ask me about it, which opens up the chance for a "teaching moment".<br /><br />To paraphrase Rick Blaine in Casablanca:<br /><br />If they think about MS at all, they probably would have misconceptions, but since they don't think about it, it's probably not an issue.Lorihttps://www.blogger.com/profile/14154205811855856931noreply@blogger.com