Before I comment on that I first want to thank everyone for the great comments on my last post. Now I have some good ideas to design an MS bracelet or some other type of jewellery. A friend of mine, who is very talented, will be making the items. Hope to have something soon and will post pictures of course!
Energy. I never have enough and run out of it so quickly. I know I'm repeating myself when I say how frustrated I am, at not being able to do all the things I want and need to do. The days of multi tasking are long over. Heck! I can barely single task! AND there isn't a single drug out there that helps; at least not for me.
So everyday I do the balancing act and every day, fall off the wire.
I can't explain this fatigue You have to experience it to understand. It isn't a sleepy feeling. It's a feeling of physical weakness, of brain drain, and well, being what I call a "space cadet". I never know when it's going to hit, although I know if I do to much it will. Too much isn't a whole lot anymore. The worst part is having to put up a front when "busy bodies" are around. I can't handle their unhelpful comments ( I'm tired too, Why don't you take X drug? I know a person with MS and they run marathons,You need more sleep, Get over yourself, Quit feeling sorry for yourself and go do something etc. etc.)
Oh! how I hate the feeling of total uselessness. Sitting on the couch, even trying to use the t.v. remote is a chore. Thank goodness for the old movie channel. It gets me through many a weary bout of fatigue.