Wednesday, February 2, 2011

E: Energy

 E: Energy

Before I comment on that I first want to thank everyone for the great comments on my last post. Now I have some good ideas to design an MS bracelet or some other type of jewellery.  A friend of mine, who is very talented, will be making the items. Hope to have something soon and will post pictures of course!

Energy. I never have enough and run out  of it so quickly. I know I'm repeating myself when I say how frustrated I am, at not being able to do all the things I want and need to do.  The days of multi tasking are long over. Heck! I can barely single task! AND there isn't a single drug out there that helps; at least not for me.

So everyday I do the balancing act and every day, fall off the wire.

I can't explain this fatigue You have to experience it to understand. It isn't a sleepy feeling. It's a feeling of  physical weakness, of brain drain, and well, being  what I call a "space cadet". I never know when it's going to hit, although I know if I do to much  it will. Too much isn't a whole lot anymore. The worst part is having to put up a front when "busy bodies" are around. I can't handle their unhelpful comments ( I'm tired too, Why don't you take X drug?  I know a person with MS and they run marathons,You need more sleep, Get over yourself, Quit feeling sorry for yourself and go do something etc. etc.)

Oh! how I hate the feeling of total uselessness. Sitting on the couch, even trying to use the t.v. remote is a chore. Thank goodness for the old movie channel. It gets me through many a weary bout of fatigue.

1 comment:

Pheonix said...

Wow...I' sure that someone I love knows how you feel...By the' s tough for us(don't have ms) to get used to the fact that our friend for example battles ms...we want to help...but we know that we can' t...we can't understand how you matter how hard we' ll try...but at least we want to be by your people try to be with you...don' t push them away ... :)