Friday, September 30, 2011

Birthday Adventure

Did the "CN Tower Edge Walk"  for my birthday. Not the fancy stuff like hanging by my heels over the edge or standing on my tip toes, but I did walk all around on the edge.  Yeah, having poor balance and wonky legs makes me less of a daredevil. I also didn't want other people to see me wobbling; thinking I was so because I was frightened. No not at all, I was totally calm. The only thing I don't like is how fat I look in those coveralls!

Monday, September 5, 2011

High Profile

Before I get into my post; you should check out Google's (Google Doodle) tribute to Freddie Mercury. He would have been 65 today. The band Queen,  was,  and still is,  a huge favourite of my friends and me.

Then there is Neil Cavuto, a news correspondent on Fox Business News, who talked on air about his MS. I don't watch Fox, but a friend of mine does and told me about it. Out of curiosity I  decided to read the story  online.
Good for Neil Cavuto to admit publicly he has MS and talk about  the typical stages: denial, anger, depression, acceptance. Not so good, that once again the world is misinformed about MS. Another person  "fighting" MS believing " I've got  MS but it hasn't got me".

Here are my MS facts:

MS progresses, no matter what you do. It's different for everyone and progresses at different rates.

All the drugs in the world won't stop progression. Maybe slow it down a bit, but MS will continue to progress.

Not all MS suffers end up in a wheelchair. Most don't.

MS does not cause muscle atrophy. MS affects neurological function, which can impair mobility, which can lead to muscle atrophy.

There are common symptoms such as fatigue and depression, but MS is different for everyone. That is why it is often difficult to diagnose.

MS is not a death sentence. Rarely, does anyone die as a result of MS.

Keeping yourself as fit and healthy as possible is the best way to live with MS, however; no amount of juice, vitamin pills, drugs, meditation, acupuncture, psychotherapy, prayer, exercise, massage, chiropractic,  marathons, positive thinking, will halt the progression.

You don't have to be a super hero when you have MS. You don't have to prove anything to anyone. It isn't a battle.

There are days when you will want the entire world to get lost.  You won't feel like putting on a  brave face.

You will have to endure the blessed  ignorance of those who are trying to help you . You will be accused of not trying to help yourself.

You will have to accept that there are things you can't do anymore.

MS is a crap shoot. It sucks !!  It's got you and that's that!!

You can live with it though, and you can still  have a good life

Friday, September 2, 2011

Night Time Worries

A quick post before I go to bed. Trying not to worry about the appointment with the surgeon next week and trying to not worry about another meeting at work. Ahh! I feel like running away, only it's too hot out (32C)
and my thyroid would still be lumpy. I have to keep working too, even though they are really sucking the life out of me. Once again I have new bosses and they of course have their own take on my medical accommodation.
I say if it ain't broke why fix it?

I could understand the meddling if I were a bad worker; but I'm actually a pretty good worker!I do as much as any of the healthy people.  Well I'm going to try and not think about it and enjoy the long weekend. The last one of summer. It's supposed to cool down quite a bit by Sunday and I'm looking forward to that.

Next post I have to talk about my favourite dream.