Monday, September 5, 2011

High Profile

Before I get into my post; you should check out Google's (Google Doodle) tribute to Freddie Mercury. He would have been 65 today. The band Queen,  was,  and still is,  a huge favourite of my friends and me.

Then there is Neil Cavuto, a news correspondent on Fox Business News, who talked on air about his MS. I don't watch Fox, but a friend of mine does and told me about it. Out of curiosity I  decided to read the story  online.
Good for Neil Cavuto to admit publicly he has MS and talk about  the typical stages: denial, anger, depression, acceptance. Not so good, that once again the world is misinformed about MS. Another person  "fighting" MS believing " I've got  MS but it hasn't got me".

Here are my MS facts:

MS progresses, no matter what you do. It's different for everyone and progresses at different rates.

All the drugs in the world won't stop progression. Maybe slow it down a bit, but MS will continue to progress.

Not all MS suffers end up in a wheelchair. Most don't.

MS does not cause muscle atrophy. MS affects neurological function, which can impair mobility, which can lead to muscle atrophy.

There are common symptoms such as fatigue and depression, but MS is different for everyone. That is why it is often difficult to diagnose.

MS is not a death sentence. Rarely, does anyone die as a result of MS.

Keeping yourself as fit and healthy as possible is the best way to live with MS, however; no amount of juice, vitamin pills, drugs, meditation, acupuncture, psychotherapy, prayer, exercise, massage, chiropractic,  marathons, positive thinking, will halt the progression.

You don't have to be a super hero when you have MS. You don't have to prove anything to anyone. It isn't a battle.

There are days when you will want the entire world to get lost.  You won't feel like putting on a  brave face.

You will have to endure the blessed  ignorance of those who are trying to help you . You will be accused of not trying to help yourself.

You will have to accept that there are things you can't do anymore.

MS is a crap shoot. It sucks !!  It's got you and that's that!!

You can live with it though, and you can still  have a good life

2 comments:

Peace Be With You said...

Truer words were never spoken.
Judy

neurolukas said...

Queen is also my favorite band:) I am MD , neurology resident. I wrote about MS and other neurological conditions. People interested in the filed are most welcome on http://strokeandneurology.com