For Immediate Release
Multiple Sclerosis Patients Denied Treatment in Canada
(Fredericton, New Brunswick, March 13, 2011) – The “Beyond MS Association of Canada” is planning an education, advocacy and fundraising tour to begin on Canadian CCSVI (chronic cerebrospinal venous insufficiency) Awareness Day, May 5, 2011. The “New Hope for Multiple Sclerosis 2011 Canada Tour” will share personal accounts of how a treatment (venous angioplasty) for CCSVI has given multiple sclerosis (MS) patients a new lease on life.
CCSVI is a condition marked by limited blood flow from the major veins that drain the central nervous system. The reduced blood flow from the brain and spinal cord is caused by collapsed or blocked veins and is treated by venous angioplasty. Although the connection between CCSVI and MS is not yet fully understood, the results experienced by MS sufferers who have received this treatment are remarkable.
Venous angioplasty is still experimental in Canada. The federal government has taken the position that evidence is lacking to support it as a viable treatment for MS. In spite of the controversy surrounding this treatment, more than 10,000 people worldwide have received venous angioplasty including Tim Donovan, the Tour’s spokesperson. Donovan left Canada for venous angioplasty in 2010. The improvements to his health were almost immediate and life changing. In addition to improved mobility Tim experienced enhanced balance and cognitive functioning.
Donovan has been successfully sharing his story in New Brunswick and plans to continue across Canada with a team of volunteers who are helping to organize the Tour; “seeing is believing”, he says. Informative rallies are being planned in major cities and towns, from St. John’s, Newfoundland to Victoria, British Columbia.
400 Canadians die each year due to MS complications. This number does not include those who have given up on their fight as the suicide rate for MS patients is seven times the national average. There is an urgent need to voice the MS community’s concerns and raise the Canadian publics’ awareness of venous angioplasty which presently represents the most effective means of treating CCSVI and consequently MS.
The “Beyond MS Association of Canada” is a national charity that has advocated for MS sufferers since 1997. The “New Hope for Multiple Sclerosis 2011 Canada Tour” is its latest venture in the hopes of making testing, treatment and follow-up care widely available in Canada. This Tour is being sponsored by Canadian businesses and individuals who have joined their voices and resources to make a difference and give “New Hope” to the MS community in Canada.
For more information or to get involved please contact:
President, "New Hope for Multiple Sclerosis 2011 Canada Tour"
Director, “Beyond MS Association of Canada”
Monday, March 21, 2011
K: Karma: One's action determine destiny
This karma thing is really hitting home. I think about all the dumb things I do and the end result. Nobody to blame but myself. Yet at the same time I see the stupid actions of others having an impact on me. Does it mean that I in turn am stupid because I allow it to happen? It's confusing. For example I'm having problems at work again ( and I really hate that my blog posts are so often about work). An individual who works on the same team as me is seeking a work accommodation That's fine, but they have dragged me into their mess. What a mess too!! I tried to explain to this person that just because they can't get the same accomodation as me (working at home ) doesn't mean that they should try to wreck what I have. But that seems to be the way people operate at my office.
How dumb of me to think that being open and honest about my MS was right. It's being used against me and I'm really am getting fed up. I can't even think about the future because it just looks so bleak. All I can do is live day to day and hope for the best. Not something I'm very good at; but I'm learning.
My plan to design and sell an MS bracelet is out. There are so many people out there who are already doing this and there are so many different fundraisers . One person selling Avon to raise money for a friend's MS surgery. Another selling bracelets and having an MS fund raising dinner for the same reason. I didn't want to raise money for myself. I wanted to give the money to keep going the legal action for CCSVI surgery. Now I guess I will just give my own money and try and come up with another way to rise some cash for this cause.
OK now I have to review my entire blog for any work references. Have to prepare myself for a new battle; which is really the same old battle. It sucks!!
Monday, March 14, 2011
What can I say about the crisis in Japan?. I have a deep fondness for all things Japanese. I correspond with a few people there through my post card club and some of them have been able to post messages about what is happening to them. What would I do if I suddenly found myself homeless and out of work? That's the situation for many there, as well as coping with the worry of missing family and friends and facing the devastation of their world. Then there is also the deepening crisis over nukes. The latest report is that the radiation is spreading and people in the area have been told to stay indoors to avoid radiation sickeness .
I don't know what to do except say a prayer.
Tuesday, March 8, 2011
I: International Women's Day
Happy 100th birthday!! Check out events happening all over the world
I use to belong to the Women's Commitee at work I enjoyed it ; loved organizing seminars. The three best ones I'm proud of: A female police officer who gave a talk about her experiences when she was sexually assaulted. She did everything wrong and wanted to share that, along with information about the right things to do. Can you beleive she didn't report the assault because at the time she wasn't wearing a bra, and thought she would be blamed!!
Then there was the seminar with "Men Against Violence Against Women" I was sick when it happened but Oh Wow! I was told that there was a huge turn out. So many men coming to me afterwards and thanking me for making them more aware.
Finally, the speaker from Willow, a group for breast cancer survivors. The director of our office breaking down crying when she admitted to her breast cancer ordeal!! She gave an excellent impromptu talk about how to get through it The applause afterwards was deafning
So what happened? The chair of the committee took credit for all the hard work by me and the other members. Not even a crumb of recognition! She did it to further her career and it worked!! I was so disillusioned that I quit.
Is this the price we pay for joining the cut throat world of business?
Happy Day to all you women out there who work hard. You make a difference.
Tuesday, March 1, 2011
H: Happy Rambles
Already March!! Where did February go?
I came across this website Happy Rambles It's a journal where, everyday you list five things you are thankful for. The idea is this will help improve your mood and lead to positive thinking. I'm giving it a try. Right now, I have so many things to worry about, I could use a bit of a boost.
Tomorrow I have a meeting at work to "review" my situation. Rumour is that they are going to take away my tele-work and that there are lots of people who want me to lose it. Not because they want it . They always claim that they could never stand working at home; as they would miss the social atmosphere of the office. That makes me laugh, a bitter laugh, because it is such a poisoned atmosphere. I think they just can't stand that somebody else has something they don't have . Don't you just hate rumours ? So right now everything sucks!!
My MRI has been rescheduled to April 1st. Happy April Fool's to me