Here is one of the few things left that is made in Canada and owned and operated by Canadians.
Medical Marijuana!!
This is how I get my weed now; from a licensed producer, purchased online, and delivered to my door by express post. Amazing that it comes from the other side of Canada; British Colombia, in less than two days. They also have custom strains of marijuana for different needs. I use the ones for pain relief, muscle spasms , anxiety, and for sleep.
MS fatigue is bad enough and insomnia only makes it worse. My fatigue can actually be dangerous. It comes on so suddenly and then my brain switches off. I can't function at all, so the only thing I can do is sit and wait for it to pass. Sit and wait, rest and rest. It's boring and frustrating and at times gets me so down.
For me, having MS is like living in a medium security prison. I have some freedom, but the warden, MS, really is in charge. The biggest challenge is that I don't look sick. Everybody thinks I can still function like a regular person, but I can't, so I disappoint others.
I just keep going . Swimming is one of my main activities. I swim and swim, and yes, it is a huge benefit, but how long can I keep going? I just keep going. What else can I do?
Here are a few of my swim buddies who really help to keep me going.
It was a great summer at that pool. The indoor pool doesn't open till the 20th ! I already feel out of shape.
2 comments:
Hello
See how one MS patient is thriving and enjoying a better quality of life with the help of this community
I was wondering if you could help us by sharing this on your web page and anyone else that you think would find interest in this? Thank you in advance.
http://www.castingnewlives.com/2014/09/stillpoint-life-inside-zen-community-penny-peyser
Hello Carole
I just got a lovely card from you. I read your paragraph "MS fatigue is bad enough and insomnia only makes it worse. My fatigue can actually be dangerous. It comes on so suddenly and then my brain switches off. I can't function at all, so the only thing I can do is sit and wait for it to pass. Sit and wait, rest and rest. It's boring and frustrating and at times gets me so down. It is so like what happens to me but I've never managed to express it well enough for others to understand. Even my wife doesn't seem to realise that my brain sort of switches off. I don't have MS, I have an unidentified neuropathy which is killing the nerve cells for no apparent reason.
Then there was your comment "The biggest challenge is that I don't look sick. Everybody thinks I can still function like a regular person, but I can't, so I disappoint others." I couldn't even get sickness benefit people to accept I was ill. So I can fully appreciate your frustration and -erhaps, like me, you feel guilty at disappointing oithers even when there is nothing to feel guilty about.
I haven't read any of your previous blog postings but I certainly shall do. It's lovely to find someone who knows what it's like - even if it isn't lovely for you!!
Take Care and All the Best
John
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