Tuesday, July 20, 2010

Another MS Celebrity

It's cooling down out there. 28C today instead of that horrible 38C we had just  a few days ago.
I had a couple more "spells" that left me in tears. Today I'm feeling not bad, not great, but not bad. I'm back using my THC, after a two month break. It's the only way I get a decent night's sleep.

OK truthfully? MS in the summer is a huge pile of suck.

AND, not enough that I feel like crap, that I have to have another perfect MS celebrity thrown in my face!!

This happened a few days ago while I was on holiday ( photos to be posted soon). I'm not a huge fan of country music; especially now that it has become almost as bland as pop music, with new songs coming out ever week, only to be forgotten the following week. I had no clue who Clay Walker was until a supposed near and dear one told me about a biography show they saw of him. AND I so hate those biographies of celebrities that tell you absolutely nothing about the person but are simply a vehicle to promote their latest song or movie.

OK I'm sure Clay Walker is a very nice guy and yes, it is great that he has his own MS foundation to raise money toward a cure ( poor misguided soul) however: I really don't need to here about his positive attitude and how well he manages his MS ( with drugs of course!!) and how he travels all over the country doing shows!

Dear Loved One: Do you have any idea how fed up I am hearing these so called inspirational stories?  I travel thousands of kilometers to visit you without the benefit of my own private bus or plane, nor do I have an entourage of people to wipe my butt.  No, I travel with all the other peasants on crummy planes, get pushed and shoved and man handled, through check in, customs, immigration , shuttle buses,  to come and see you.

It's hot out and I don't feel good, but I really am trying my best to keep a grip on things. Hey! this celebrity  is coping so well with MS. Good for him. Why do you feel the need to mention him and his great attitude?? What purpose does it serve?  The way I take it is that you don't think I have a postive attitude and just like everybody else, you think I'm not trying to get better.

I pray you never have anything like MS. I pray that you never need people to give you a break and just accept that there will be days when you feel horrible and can't do anything.

Get this straight.  MS sucks and it sucks big time. You think I'm cynical? Fine. All I know is I get up every day, face my responsibilites, and get on with my life. I actually do enjoy life but not all the time. If that isn't good enough for you, too bad. I refuse to be the nice little girl  who smiles and is just "Oh so happy" to have a crap condition like MS . I'm not at all happy about it, in fact I'm quite pissed off about it. Most of the time though you will notice that I just keep my mouth shut and carry on. You will also notice that I rarely ask for help because you make me feel like I don't have the right to ask for any. This is Love?

You want cynicism? I'm sorry to say that Mr. Walker will go the way of all the other celebrities who tell us to take our meds, drink juice, exercise, think positive, meditate, pray, etc. etc. His illness will progress as it does in all of us and there ain't nothin he can do about it.

So that's my whine fest for the day. I promise to post photos soon

3 comments:

Have Myelin? said...

Preach it! =)

青卉 said...

People throw stones only at trees with fruit on them.............................................................

Peace Be With You said...

Thanks for telling it like it is.
Judy