Tuesday, July 13, 2010

The MS Blues

Just returned from a trip to the Southwest U.S. It's as hot in South Western Ontario as it is down there, so I decided to go for it. I'll post some photos as soon as I figure out how to get them off my mini  camcorder. Yeah I bought a JVC Everio, which makes movies and takes still shots. Handy item and so far very easy to use.

Speaking of hot weather; it really is messing with my head and my body. MS sure doesn't like the heat and neither does menopause. I feel like a big vat of sweat all the time.

  Heat related symptoms include : losing my memory, confusion, anxiety, muscle spasms, and worst of all; totally losing control of my bladder . I know it isn't regular incontinence since I'm OK  99% of the time, even when I go for long walks and go up and down the stairs.
 ,
Two weeks ago, I was out walking and out of no where I peed my pants. Not just a little bit, no, I was gushing and couldn't stop it.  The day before I went for a very long walk and felt nothing except that walk was only supposed to be 15 minutes and ended up being nearly an hour because I couldn't remember where a restaurant was. Hey ! I had only been to the place a few days before and it is in a neighbourhood I know very well. That evening when I got home I couldn't remember  where two very important items where. I was  confused and had this weird anxious feeling. That same day at work I couldn't remember what floor I worked on. I had only gone up one floor to IT services to get my computer fixed. On the way back I got off at the right floor only I was certain I was in the wrong place. Luckily, two co workers got off another elevator and I followed them.   

The muscle spasms are strange; like mild electric shocks. My toes curl up too

How am I coping? Well taking time off work helps. Even though I'm taking a big hit financially, I don't care.
I'm allowed five weeks off without pay, over and above my paid vacation. The payments are spread out over a year.  I'm having trouble coping, even working at home in an air conditioned house.  I just need some time  to do things I enjoy and do them when I feel like it. On my holiday I spent lots of time swimming .  Lucky? Yeah I'm lucky. I know.

Tomorrow I'll talk about crummy remarks about my MS, made by people who should know better. 
 

6 comments:

walkwithmems said...

I'm glad you enjoyed your vacation. Take all the time you are owed. I can't image how hard the sense of confusion and loss of memory must be to deal with. You seem to be taking it well. Please keep a cell phone with important numbers in it with you at all times! Take care.

吳婷婷 said...

無私分享,很不錯哦~謝謝~~............................................................

Have Myelin? said...

I know. I've peed in my pants (and in the BED!) without MY permission!

Very embarrassing. But...what to do except .... well, I changed my underwear and said Harumph.

張怡 said...

這麼好的部落格,以後看不到怎麼辦啊!!!..................................................................

dawsonfelicia張君dawsonfelicia均 said...

人生的「三部曲」應該是無愧的昨天,充實的今天,與充滿希望的明天。..................................................

Taxingwoman said...

Who are all these Chinese folks?