Read this article in today's Star. I can so relate to this woman's story since she too is in the "you don't look sick" category. The cost for CCSVI surgery in Albany, is pretty reasonable compared to going overseas. I have to decide in the NewYear if I'm going there for the surgery or wait to see what happens in Canada. Albany is close enough that if I have any complications I can easily return there. I still think that the procedure should be available in Canada, and will continue to support the ongoing lawsuit to acheive that, however: Should I wait?
Yesterday during a lunch outing, someone made a comment that they noticed I'm "not on my game" the way I use to be. They weren't being mean. It's a simple fact and it's true. I'm not right in the head and I know it. The endless up and down of this MS condition is hard to handle some days. Most people don't notice it but those who are close to me see the changes. If I'm not on my game; then what is my new game and what is my game plan?