Sunday, December 19, 2010

Another CCSVI Story

Read this article in today's Star. I can so relate to this woman's story since she too is in the "you don't look sick" category. The cost  for CCSVI surgery in Albany, is pretty reasonable compared to going overseas. I have to decide in the NewYear if I'm going there for the surgery or wait to see what happens in Canada. Albany is close enough that if I have any complications I can easily return there.  I still think that the procedure should be available in Canada, and will continue to support the ongoing lawsuit to acheive that, however: Should I wait?

Yesterday during a lunch outing, someone made a comment that they noticed I'm "not on my game"  the way I use to be. They weren't being mean. It's a simple fact and it's true. I'm not right in the head and I know it. The endless up and down of this MS condition is hard to handle some days. Most people don't notice it but those who are close to me see the changes. If I'm not on my game;  then what is my new game and what is my game  plan? 

8 comments:

colros said...

Don't waste your money. Zamboni's "CCSVI" is junk science his "liberation" treatment is junk science. See blog for details:

http://liten.be//htWNn

Renea said...

I found your blog on this website..You actually have an award waiting. Thought I would let you know.http://thedailyreviewer.com/top/multiple-sclerosis

My blog
http://reneasskinnylove.blogspot.com/

Taxingwoman said...

colros your article on Dr. Zamboni is total crap!! although I have to agree with the destructive lifestyle articles.

Renea Thanks for dropping by my blog and Thanks for the link

Stuff could always be worse said...

Not on your game, is a common feeling with MS? Sometimes I guess
kim

mizms said...

Found your blog via google and I hope you get treated soon! This surgery is so worth it- 75% of my symptoms are gone- had the procedure four weeks ago. I keep a blog to try to be helpful to others who are seeking treatment- feel free to check it out if you like: mizms.wordpress.com. Also, if you're on FB, feel free to friend me: Bhakti Shankara. I can hook you up with some great resources regarding obtaining CCSVI treatment.

jjtierney said...

Post CCSVI procedure:

My wife had the procedure done in Albany 3 months ago. We saw immediate improvement in fatigue and stamina from day one. We see continued subtle improvements on an almost daily basis since then. Spacticity - gone. Cog fog - gone. MS hug - gone. Gastric problems - gone. Numbness in extremities - greatly diminished. Ability to curl her toes and wear her stilettos again - priceless. CCSVI treatment may not be the 'cure' for everyone, but it is certainly part of the puzzle.

Taxingwoman said...

Thank You jjtierney With all the negative stories lately in the news about CCSVI we need to hear about success!

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