We are having very odd weather for July. It's been cool and rainy this week so far, more like April.
Have to say I'm feeling like crap. I know I don't have big challenges like some people, who have to deal with being wheelchair or bed bound. For me it's a bunch of little things and when those little things pile up, it sucks.
If I could have one wish come true it would be to be able to go to bed, fall asleep, and stay asleep through the night. I'm not greedy, I'd settle for six hours straight. No wonder I'm so darn tired. How can I have energy with these fragmented sleep patterns night after night. I go to bed and the burning and tingling in my feet keep me awake. The crazy, high pitched, whooshing, in my ears drives me nuts . Pains that move around, come and go, disappear, and come back randomly. And headaches coming on more often , stronger, and last longer.
No none of it a big deal individually, but lumped together, well I just start crying because I get so fed up.
I'm also sick to death of being treated either like a delicate flower or mental defective . Worse, the ones who tell me how strong and brave I am. No I'm not, but I like having a roof over my head, good food to eat, and a clean bed to sleep in, so I get up and do my thing. Not as good as I use to, but good enough to get me through the day.
I found a "handy man" who's going to come over and do all those little annoying jobs that need to get done around here. He was recommended by a friend . Hope he works out I've had so many incompetents who have made things worse around here. I rather pay somebody than put up with the good Samaritans. Oh am I crabby today or what ?
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3 comments:
Hi Carole:
I'm sorry to read you are still not feeling well. Sleep is so important and sometimes we just don't know how important until our whole system is out of whack. One symptom may mean one thing, when it really is because of not enough sleep.
I strongly urge you to talk to your doc about pain management (non-narcotic even, so you can still function in daytime). I use Requip for the tingling and jumpiness in my legs, feet and arms and it works for me.
The burning when it gets bad is when I resort to Neurotin. I go in spurts - I take it for a week, the symptoms calm down and then I taper off and quit until I need it next time. Not quite the way it was intended, but it is the only way I can use it and not become dependent on it.
Please ask your doc for help so you can get some rest. That crap feeling needs to go!
I hope you feel better soon.
Anne
I can sooo relate to being sleep deprived! My MS clinic forwarded me to a sleep disorders clinic and some of the changes have helped. Mostly in just always going to bed at the same time and always waking up at the same time so my body always knows when I "should" be sleeping. But ultimately, she did forward me back to my neurologist saying I could get a sleeping pill to help me sleep through my tingling legs or hot and cold waves. Gab... something. I have done that though.
Hi! Anne Thanks for the advice I always appreciate your practicality
Hi!Kim
I hate sleeping pills and I follow the sleep therapy advice (go to bed the same time etc.) Doesn't work for me.
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