Monday, September 8, 2008

Just Get On With It

No time today for photos . I was too busy being courted by management and the union today and writing up a report about my work/MS situation. Lots going on that I can't talk about except to say things are heading in a much more positive direction. Now if they would just get on with it and quit all the talking. Oh the bureacratic tribalism of the office!

The Amantadine seems to be working. I feel tired tonight but it is more of a normal, end of the work day kind of tired instead of a zombie, brain dead, tired. I even managed to get out for a walk after dinner. I also notice that it's a little easier to fall asleep as I have less of the twitches.

Tomorrow I have to get myself over to the Farmer's Market to buy what I think will be the last of the summer peaches. The apples are on sale now . I had my first Macs of the season and they taste really good.

I'm all talked out or rather typed out, thanks to all the yakking and writing at work today.

If you really want change vote Green.

Sunday, September 7, 2008

Election

Here's as good a place as any to read about the election Oct. 14th.
I'm voting Green, read about it here

Friday, September 5, 2008

Art and Indian Food

That's it! I've decide that this weekend I'm going to write a letter for my manager, outlining all the reasons why I should be allowed to tele work. I'm taking far too much time off. Don't they want me to be productive? I've read over the work "Illness and Injury" policies, and the "Medical Accommodation" procedures. They state very clearly that the employee has a right to input as to what the accommodation should be and the employer doesn't require a diagnosis to proceed. I'm still willing to go through the Health Canada assessment, however it's taking too long . I need help now. What have I got to lose ?

Went for a walk in the rain this evening It wasn't an electric storm, just heavy drizzle.
It felt so good after a week of heat and humidity to have that cool rain splashing me. I didn't mind at all getting wet. Stopped in at the drugstore and indulged in a couple of pick me up, lipsticks. After that I came home and decided to make some filling and dough for Samosas. They're to go with Tandoori chicken and Basmati rice for tomorrow night's dinner. I'm getting the hang of this Indian cooking. It tastes pretty good.

I still think I have a Vampiric streak. I seem to recover from my "spells" as soon as the sun goes down . I sure had lots of those this week. They were a little less intense , so perhaps the Amantadine is working. I've decided to wait another week before I up the dose like I'm supposed to. Yeah bad girl, not following the doctor's instructions .
I just need a little more time to see , or rather feel, if this stuff is working or not. Once you up the drugs, it's hard to go back down.


If you like imaginative and fun street art ( and NO I don't mean graffiti) check out this blog by Slinkachu. I found out about him thanks to BBC news . Good to see some news that isn't about elections or the slumping economy, and yet isn't one of those cutesy human interest stories.
I'm going to add it to my hobbies list.

Tomorrow is the Locke Street Festival, which is no big deal. May as well go have a look see as it's right around the corner from my place. I'll bring my camera along and if I get any good shots I'll post some here.
One last thing :I made a boo boo the other day. 50,000 blogs are created every day, not every year . Sorry for any confusion .
Oh yeah ! I put A Stellar Life, back on my MS list .Seems like Diane Stafford still wants to blog.

Thursday, September 4, 2008

She Won't Go Away

I feel horrible. Thank goodness there was dinner ready tonight . I've been taking photos and will post them on the weekend because I'm way too tired to do it now. . I wish Mother Nature would give me a break !

Wednesday, September 3, 2008

Escape from Reality

Just when I think things are getting better Mother Nature comes along with a minor set back . That's all I'm going to say about it. I think the drugs are starting to kick in which helps.

I have retreated into the world of the Sims2 .
No MS there.

Tuesday, September 2, 2008

I Think it's Working

Feeling a little better today Perhaps the drugs are starting to work.
I wanted to do a post tonight about the "Visibility of Invisibility " Wrote the whole thing out during my coffee break today. Reading it tonight I realize it's a bunch of rubbish and I thought to myself "Carole you really should shut up" so I'll just say that if I had to choose, I would stick with invisibility.

Visibility would mean I'm in much worse shape than I am now. Yeah, it's for the birds when people say "you look so good" or "you don't look sick" still better than talking to me like a baby, the way they do to the guy in a wheelchair at work.

I did bad on the health quiz tonight 3/8. I always thought it was seniors who shared prescription drugs, turns out it's teenage girls !

Monday, September 1, 2008

75 Million Blogs


In answer to my question of last week.There are about 50,000 new blogs registered every year,however most are seldom, if ever, used. Of the 75 million blogs worldwide only about 10% are updated regularly, meaning at least once every 90days. Those interesting little stats come from Foreign Policy magazine of which I'm now a subscriber. Lots of stories in it that you will never see in the mainstream media.

I haven't felt like blogging at all the last few days. It's been a funny long weekend for me, up and down with bursts of energy, followed by total shutdown. Can't say the Amantadine is working yet or not. I think it will be at least a few more days before I know for certain. Hard to tell with this crazy MS thing.

I did get a free electric kettle on Saturday. A cordless stainless steel kettle, which I think the water for tea tastes so much better from compared to that awful plastic kettle I had. The plastic kettle matched the decor in the kitchen, which is a really dumb reason to poison myself with plastic infused water.
The reason it was free is without me knowing, I had amassed $150 worth of grocery points at my local supermarket . I get my groceries delivered from another store and usually only stop in the local one when I run out of something. Amazing that over 6 years of buying bits I acquired so many points. At first I thought it was a con to try and lure me back as a regular customer, but no, the customer service lady said I really did have the points and I could use them to buy anything in the store. Still suspicious, I decided on the kettle figuring I could just dump it at the cash if buying it turned out to be a hassle, then on a whim picked up some serving spoons and a couple of tins of chillies. End result:It was an easy transaction and I only had to pay the tax. Any wonder I'm so tired, the way I over think things?

Tomorrow it will be one year I have worked at the local office. I transferred from Toronto wanting to be closer to home. Toronto use to be home, only it's too expensive for a single parent to own a house there. I remember last year at this time wondering how it would all turn out. Much worse than I imagined. Maybe by next year things will be better.

Now the last long weekend of summer is over . Not a bad summer aside from the fatigue (which is dreadful) my MS symptoms much less than the past three summers.


Here's a good article in the Independent, about life lessons learned through a brain lesion.