Last night I posted a link to Images of MS, a photo project about different people who have MS.
It seems that my fellow bloggers feel the need to educate me about the links this site has to a certain drug company.
Hey! I'm not a Bloody Fool ! I'm well aware of the drug sponsorship.
When I was first diagnosed with MS I didn't know a thing about it. So what did I do? I turned to the internet to find out all I could . First stop The MS Society of Canada, who's website is sponsored by Biogen Idec, makers of Avonex , as is the MS Alliance. Next I tried MS Watch, proudly connected with Teva, makers of Betaseron. In the meantime my mother bought me Montel Williams book " Climbing Higher", him turning out to be one of the biggest drug pushers. Oh ! and the MSAA, are also pretty good at spreading the drug message.
Site after site with very little info about alternatives Like maybe a massage might be better than more, stronger, pain killers?
Next I went on some forums,asked for advice and what did I get ? People telling me about this drug and that drug. I decided to stay away from the forums after a person recommended Symbalta, a highly addictive anti depressant, with a lovely side effect to boot. Psychotic
Are the bloggers any different ? No I'd say the vast majority discuss all the drugs they shoot up every day even though they are vocal critics of the very companies that make said drugs.
Over and over I am told that these drugs work and yet I'm not convinced. How does anybody know that they really work ? You haven't had a relapse ? or it wasn't as bad as last time ? Can you say for certain that it was thanks to your medication ?
And what about long term effects ? I'm planning to be around for at least another 20 years or more . Am I really supposed to fill my body up everyday with medication and think it won't catch up with me ? That I won't end up like the HIV people ?
And I can get as much drugs as I want because I have a very good drug plan . My union is even saying that soon I will have a drug "credit card" Take it to the pharmacy and I only have to pay the 20% deductible. Wow ! just imagine when the doctors , the supreme drug pushers, find out about that.
I take Advil and a couple of measly sleeping pills every week .That's it. I don't take Allectec for my fatigue because that just gives me fake energy. And I don't take anti depressants because they don't work . And I don't take Amantadine for my spasms because it's an anti viral drug that is used to fight flu. So if I get the flu will that stuff work if I've been using it for years ? And is it really a good idea to mess around with your immune system ?
Answer me this ? Where exactly was I supposed to go to get info about MS without bumping into a drug company ? Isn't " Images of MS" at least trying to promote some public awareness of
MS ? Awareness that I could have used, instead of being scared out of my pants because I didn't know what the heck was the matter with me.