Wednesday, February 27, 2008

I'm not a Bloody Fool !

Last night I posted a link to Images of MS, a photo project about different people who have MS.
It seems that my fellow bloggers feel the need to educate me about the links this site has to a certain drug company.
Hey! I'm not a Bloody Fool ! I'm well aware of the drug sponsorship.

When I was first diagnosed with MS I didn't know a thing about it. So what did I do? I turned to the internet to find out all I could . First stop The MS Society of Canada, who's website is sponsored by Biogen Idec, makers of Avonex , as is the MS Alliance. Next I tried MS Watch, proudly connected with Teva, makers of Betaseron. In the meantime my mother bought me Montel Williams book " Climbing Higher", him turning out to be one of the biggest drug pushers. Oh ! and the MSAA, are also pretty good at spreading the drug message.

Site after site with very little info about alternatives Like maybe a massage might be better than more, stronger, pain killers?
Next I went on some forums,asked for advice and what did I get ? People telling me about this drug and that drug. I decided to stay away from the forums after a person recommended Symbalta, a highly addictive anti depressant, with a lovely side effect to boot. Psychotic
episodes !

Are the bloggers any different ? No I'd say the vast majority discuss all the drugs they shoot up every day even though they are vocal critics of the very companies that make said drugs.

Over and over I am told that these drugs work and yet I'm not convinced. How does anybody know that they really work ? You haven't had a relapse ? or it wasn't as bad as last time ? Can you say for certain that it was thanks to your medication ?
And what about long term effects ? I'm planning to be around for at least another 20 years or more . Am I really supposed to fill my body up everyday with medication and think it won't catch up with me ? That I won't end up like the HIV people ?

And I can get as much drugs as I want because I have a very good drug plan . My union is even saying that soon I will have a drug "credit card" Take it to the pharmacy and I only have to pay the 20% deductible. Wow ! just imagine when the doctors , the supreme drug pushers, find out about that.

I take Advil and a couple of measly sleeping pills every week .That's it. I don't take Allectec for my fatigue because that just gives me fake energy. And I don't take anti depressants because they don't work . And I don't take Amantadine for my spasms because it's an anti viral drug that is used to fight flu. So if I get the flu will that stuff work if I've been using it for years ? And is it really a good idea to mess around with your immune system ?

Answer me this ? Where exactly was I supposed to go to get info about MS without bumping into a drug company ? Isn't " Images of MS" at least trying to promote some public awareness of
MS ? Awareness that I could have used, instead of being scared out of my pants because I didn't know what the heck was the matter with me.



Oh Carole, I'm so sorry. I didn't mean to upset you and I don't think you are a fool.

It was just very timely that you referenced "Image of MS" because another blogger found the Newsweek article which features one of the "Image" guys. Both pieces ARE very inspiring.

The "Image" site is openly sponsored by Bayer (makers of Betaseron) but the Newsweek article did not make the connection.

You are not the fool, perhaps Newsweek is. And I'm sorry.

Anonymous said...

Hi Carole:

I do not take any drugs for my MS. I do not advocate drug companies.
I do not like feeling loopy via drugs.

I have had MS for over 30 years now (1976) and I have been managing symptoms with homeopathic, natural preparations in addition to supplements.

I do not understand how the ABC drugs, Rebif, Tysabri, and others can be so effective and make you feel so lousy. Anything that makes one feel so bad can't be good for you, right?

I have listed my daily intake on my blog and have tweaked it as needed. I have been to doctors who push all kinds of injections and got rid of them if they persisted, which most have.

Regarding your post, if you don't NEED a certain drug, I agree - don't take it.

However, spasms can sometimes overtake your whole life and make you miserable. I take Requip for the spasms and it doesn't interfere with anything else nor does it compromise my immune system.

I will be glad to talk to you more if you like via email, available on my blog profile.